Ontario mom thankful her daughter is on a ‘life-changing’ cystic fibrosis drug. Access not so easy for others | CBC News:
“It
brought me to tears,” Marchand told CBC News. “It means so much for my
daughter to be able to have this medication, to hopefully slow down her
disease progression and cause fewer issues.”
CF is a hereditary
disease that affects the cells that produce mucus, and can lead to a
buildup in the lungs, digestive tract and other organs. It can make the
body prone to lung infections and often, lung transplants are required.
In July,
Ontario made Trikafta available to children six years old and up. The
triple combination therapy works to correct the defect of the gene
that causes CF.
According to Cystic Fibrosis Canada, an estimated
one in every 3,600 children born in this country has CF. More than 4,300
children, adolescents, and adults with cystic fibrosis attend
specialized CF clinics, according to the non-profit organization.